Jayne Rachael Presents “Overcoming“
Overcoming is a virtual community intended to support, empower, and inform patients struggling with difficult diagnoses who, as a result, are either undiagnosed, misdiagnosed, and/or left without a clear treatment plan. Our mission is to connect patients provide them with the support they need to continue pursuing a diagnosis.
What’s on Overcoming?
Engage in the Conversation
We kindly request that you register for Jayne Rachael’s Undiagnosed/Untreated. Although it is not necessary to register to access the main content for the site, it would be a tremendous help for us to have an accurate count of who is interested in the site and what conditions they are most interested in.
By registering you also get access to all the community chats about the specific disorders. Registered guests can also use all of the interactive features, including nominating yourself or others to be featured on the site in the Above and Beyond section and recommending disorders for us to cover. We promise we won’t use your email or add it to any lists, and we aren’t selling anything!
There seems to be more and more mental and physical health conditions that online communities report, but that baffle most doctors. However, researching your symptoms online is often more terrifying and dangerous than it is helpful. So, we rounded up all of the need-to-know content around health conditions that often confuse doctors but are experienced by many. I am starting with the disorders that I am most familiar with based on either my own personal experience or those of friends or professionals that I am working with. The plan is for “Undiagnosed/Untreated” to continue to expand to include more and more misunderstood illnesses/disorders or side effects.
Recommend ideas for a health condition for us to cover.
According to the Mayo Clinic, Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Learn More
How to Best Communicate with Loved Ones Experiencing Chronic Pain
Myasthenia gravis is an autoimmune, neuromuscular disease that causes weakness in the skeletal muscles that are under our voluntary control.
Autoimmune Brain Disease “Brain On Fire”
Hashimoto’s Encephalopathy (HE) is a type of autoimmune encephalitis (AE) in which the body’s immune system attacks the brain, resulting in inflammation.
How Samantha Copes During The Corona Virus
I need to get off this video chat. The sun beats down through my apartment window and onto the back of my jacket, as I am all ready to go outside. Who’s talking now? What are they saying?
Social Anxiety Disorder
Meniere’s disease is defined as a disorder of the inner ear. It can lead to vertigo, which is a sensation of feeling dizzy and off-balance, and you may even feel like you or the room you are in are spinning.
Most everyone gets nervous occasionally in certain social situations. For example, starting a new school, or job, public speaking or going on a date can cause many of us to feel anxious.
Maladaptive daydreaming disorder (MDD)
Also known as ‘excessive daydreaming,’ involves vivid and excessive fantasy activity that interferes with real life functioning.
Pelvic floor dysfunction is an umbrella term for a variety of disorders that occur when pelvic floor muscles and ligaments are impaired.
We will change the paradigm and get doctors and researchers to listen to patients’ stories.
The goal is for “Undiagnosed/Untreated” to be an interactive site (although the interactive pieces may take a little while to go live.) There are chatrooms where people can tell what worked for them and ask for or offer advice. There will be a place where those who have overcome a particular disorder can volunteer to mentor someone just starting to experience it. I personally found it very helpful to be mentored by three people who have overcome antibiotic toxicity. In some cases, there will be surveys where people can answer questions about their own symptoms.
Above and Beyond
They went above and beyond in looking for cures and taking charge of their own health problems.
Click here to nominate someone (including you) who you would like to see covered in above and beyond.