Overcoming Together

Jayne Rachael Presents “Overcoming Together“

Overcoming Together is a virtual community intended to support, empower, and inform patients struggling with difficult diagnoses who, as a result, are either undiagnosed, misdiagnosed, and/or left without a clear treatment plan. Our mission is to connect patients provide them with the support they need to continue pursuing a diagnosis.

What’s on Overcoming?

Why Overcoming?

Engage in the Conversation

We kindly request that you register for Jayne Rachael’s Undiagnosed/Untreated. Although it is not necessary to register to access the main content for the site, it would be a tremendous help for us to have an accurate count of who is interested in the site and what conditions they are most interested in.

By registering you also get access to all the community chats about the specific disorders. Registered guests can also use all of the interactive features, including nominating yourself or others to be featured on the site in the Above and Beyond section and recommending disorders for us to cover. We promise we won’t use your email or add it to any lists, and we aren’t selling anything!

Health Conditions

There seems to be more and more mental and physical health conditions that online communities report, but that baffle most doctors. However, researching your symptoms online is often more terrifying and dangerous than it is helpful. So, we rounded up all of the need-to-know content around health conditions that often confuse doctors but are experienced by many. I am starting with the disorders that I am most familiar with based on either my own personal experience or those of friends or professionals that I am working with. The plan is for “Undiagnosed/Untreated” to continue to expand to include more and more misunderstood illnesses/disorders or side effects.

Recommend ideas for a health condition for us to cover.

Long term effects of childhood Cancer

Within the last three decades, childhood cancer survival rates have improved dramatically. Learn More
Dr. Stephen Bigelsen

Diagnosed with Stage IV Pancreatic Cancer, Dr. Stephen Bigelsen thought he only had a few months left to live.
Learn More
Maladaptive daydreaming disorder (MDD)

Three people who have struggled to keep maladaptive daydreaming at bay share their stories to show others they are not alone and raise awareness.
Learn More
Fibromyalgia

According to the Mayo Clinic, Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Learn More
Communicate

How to Best Communicate with Loved Ones Experiencing Chronic Pain
Learn More
Myasthenia Gravis

Myasthenia gravis is an autoimmune, neuromuscular disease that causes weakness in the skeletal muscles that are under our voluntary control.
Learn More
Autoimmune Brain Disease “Brain On Fire”

Hashimoto’s Encephalopathy (HE) is a type of autoimmune encephalitis (AE) in which the body’s immune system attacks the brain, resulting in inflammation.
Learn More
How Samantha Copes During The Corona Virus

I need to get off this video chat. The sun beats down through my apartment window and onto the back of my jacket, as I am all ready to go outside. Who’s talking now? What are they saying?
Learn More

We will change the paradigm and get doctors and researchers to listen to patients’ stories.

The goal is for “Undiagnosed/Untreated” to be an interactive site (although the interactive pieces may take a little while to go live.) There are chatrooms where people can tell what worked for them and ask for or offer advice. There will be a place where those who have overcome a particular disorder can volunteer to mentor someone just starting to experience it. I personally found it very helpful to be mentored by three people who have overcome antibiotic toxicity. In some cases, there will be surveys where people can answer questions about their own symptoms.